Suzanne Edison, MA, MFA

Poet • Educator

  • Suzanne Edison, MA, MFA
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May 7, 2022 By Suzanne

March 2022- Autoimmune Awareness Month

I somehow missed this shout out about some of my work by TAB journal in March. The Body Lives Its Undoing, a book of poems (by me) and visual art by others, is still available. All proceeds go to The Benaroya Research Institute.

Filed Under: Art & Medicine, Illness & Healing, literature review, poetry Tagged With: autoimmune disease, poetry, The Body Lives Its Undoing, writing

September 25, 2019 By Suzanne

Hope & Despair: After Thoughts from Town Hall reading of The Body Lives Its Undoing

After reading poems from “The Body Lives Its Undoing”, and presentations by collaborators at Town Hall on Wednesday, September 18th, I opened up the conversation to the audience. The questions were penetrating and while I did my best in the moment to respond, later that night I had further thoughts that I want to share.

Dramatic and beautiful volcanic eruption
Photo credit to Gronda Morin https://grondamorin.com

How to keep hopeful when struggling with an autoimmune disease

A difficult question was posed by someone living with an autoimmune disease; she asked how to deal with hope, specifically, how to keep up hope when one is in pain and seemingly closer to despair. At the time I answered by recalling my struggles with pain and despair as a parent of a child with an autoimmune disease who, when in the thick of her treatment I had no knowledge of whether she’d get better, I also despaired. I fell off “the Hope wagon” often. And I came to think this was going to be a wild roller coaster ride and the resulting stress might sicken me in some way too. 

[Read more…]

Filed Under: blog, brief thoughts Tagged With: despair, holding grief, hope, Lisa Spiderman, Pema Chodron, The Body Lives Its Undoing

November 14, 2018 By Suzanne

Upcoming Reading & Past ones: The Body Lives Its Undoing

 

On a sunny Saturday morning in Burien, WA, about 20 residents of Merrill Gardens, along with a half dozen more friends, gathered to hear me read poems and discuss the project upon which my recent book, The Body Lives Its Undoing, is based.

They were attentive listeners and asked great questions about the poems and about autoimmune disease in general. One question was about the difference between infections and autoimmune disease. Another person was curious if there were any “bright spots” that emerged from people living with pain. I said I heard often about people letting go of things that no longer seemed important and learning to live in, and celebrate each moment.

We also showcased some of the artwork and Anna Hooser, artist, book designer and BRI Tech Assistant, was also on hand to talk about how her artwork was a reflection of the interviews I conducted and which she videotaped.

Next Reading: Friday, November 16, 2018

Optimism Brewing, 1158 Broadway, Capitol Hill  (come early to get a seat)

4:30 – 6:30 pm

Filed Under: events, poetry, readings, Uncategorized Tagged With: illness, poetry, Poetry reading, The Body Lives Its Undoing, visual art

Events & Workshops

Town Hall-2019 The Body Lives Its Undoing

Where to find Since the House Is Burning + Readings

Interview: Health Central–Expressive Writing for Caregivers

SEE MORE

Recent Posts

Book Reviews–Since the House Is Burning

October 1, 2022

Ekphrastic Review poem

June 17, 2022

MoonPath Press announcement

April 28, 2022

Since the House Is Burning-book and audio of 3 poems

April 27, 2022

Writing Workshop for Parents of Kids Living with a Chronic Illness

February 18, 2022

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