If you click on the link below you will download a PDF of the workshop information on a flyer. Feel free to pass it on to anyone who might be interested.
Events & Workshops
Below you'll find my posts about upcoming and past events and workshops. Also see descriptions of my workshops.
Teens READING from the Heart of Illness & Healing
For 9 weeks now a group of 7 teens, aged 13-18, have been coming to an after school, independent, poetry writing workshop. These teens live with a variety of chronic illnesses themselves or live with a family member who is chronically ill.
I began this workshop for teens after several years of teaching writing to, and working with, parents of kids living with chronic illness. I had written a grant to interview these, and other parents, and write a series of poems based on those conversations. When I presented my work, one of the places I read was an inner city clinic in Seattle where many of the sickle cell families I had conversed with, are seen. Subsequently, I was asked by the staff if I could teach a workshop for teens. I was excited by the idea and with the help of two more grants, was given this opportunity.
Tonight is the inaugural, culminating reading. They will read to their families, friends, clinic doctors, nurses, social workers and other community members.
They have shown determination and resilience in writing about their illnesses, about their feelings of loneliness, fear and anger. They have written about what makes them feel better, their hopes, joys and what can also be seen as normal teenage concerns of belonging, identity and passion. I put the word normal in italics because this is the thing they all struggle with, and against. What does it mean to be normal, what does it mean to have an added issue of chronic illness to layer upon the everyday stresses of school, family, social life? How do I define myself, how do others define me? (My belief is all of them are bigger than their illness and expressing all parts of themselves allows them and others to see their fullness. It enlarges all of our lives.)
They are courageous, not only in their writing, but in their willingness to get up in front of people and read their work aloud. When we first started practicing for this reading 3 weeks ago, many of them swore they couldn’t do it. They wanted one girl to read all their work, as they thought she was the “true poet” and not afraid of speaking aloud. But gradually, after much laughing, and consternation about whether they’d be laughed at, they were able to make it through a full run practice. Then one girl commented brightly, “this is going to be fun”.
Their work will also be available in book form. They chose the title: Based on a True Story: Just Beyond the Gate.
For a copy of this booklet, please see the online store soon..
Teaching Narrative Medicine
The whole field called Narrative Medicine is beginning to take off. Or at least that is my perception since I am so closely tied to and interested in it. There are masters programs, certificate programs, programs in medical humanities, and a host of literary/medical journals being published that reflect many aspects of health, illness, healing and both practitioners and patients responses, now. I have been published in a few of them and am grateful for their existence. (see publications under Resume).
Here, in Seattle, I have had the pleasure and honor of meeting and befriending a professor of nursing at the University of Washington School of Nursing, Josephine Ensign, who is pushing the boundaries of this genre and opening up nursing students eyes and ears to what narrative medicine means, in its many permutations. She also writes a blog called Medical Margins, in which she gives voice to the variety of writers in the field and offers her course’s approach and thoughts on the intersection of medicine and literature. I highly recommend you read her blog.
Today, Josephine invited me and another author, Mary Oak, The Heart’s Oratorio to read and speak to her Narrative Medicine class. I read my poem Teeter Totter, which the class had read before and we had a discussion about my intent and feelings of the poem along with some of the word choices and images, corrugated sadness, or leaving others up in the air, for example. Someone wondered if I felt frustrated and helpless, as this was his impression from the poem. Since I’d written the poem a few years ago, I said I no longer felt frustrated by other’s lack of understanding and that helplessness comes with the territory of being a parent of a child with rare disease for which there is no cure.
I gave this class the same writing exercise I gave her previous class last November, though this group was much smaller and more intimate and seemingly more willing to share their own writing up front. It was a lively discussion and I look forward to hearing or seeing some of their poems they began today.
Mary read from her book and I was struck by wondering how much her writing had changed what she felt or thought about her medical experiences or about writing in general. She hoped, as I do, that the book offered hope to those in similar situations. We both feel that telling the truth about our experiences leads to less isolation on the part of someone suffering other illnesses and offers them glimpses into how others have dealt with many of the same issues.
Writing as a Righting Journey
Writing as a “Righting” Journey
THROUGH WRITING WE CAN:
Ø Explore the ways illness effects our lives
Ø Find courage to go deeper, discovering new meaning or affirming values we already hold
Ø Have an opportunity to share our lives with others and find community
GOALS:
Ø Provide parents structure for giving voice to their experiences of having a child living with a chronic illness, e.g. changes in emotional, physical and social life
Ø Provide immediate and on-going options for writing on one’s own and in a group
Ø Provide books, readings, (fiction, non-fiction, poetry) that speak to a variety of issues surrounding illness, healing and caretaking
WHY:
“One of the more common challenges parents face when managing the care of their chronically ill children is that they simply may not have the ability to cope. Generally, the research shows that when moms are depressed, adherence [to the child’s medical needs..] will go down…”
Research also shows that emotions are centered and experienced by the part of the brain known as the amygdala. This is part of the early brain, the limbic system. Trauma and highly charged emotions can keep us centered in that area of the brain and not allow us to use our higher centers of thinking, the frontal cortex. In order to assess and move on from being stuck in feeling, to thinking about our feelings and then move into action or decision-making, we need to connect feelings to thinking, the amygdala needs connection to the frontal cortex. Judy Willis, a neuroscientist and writing teacher has shown that writing can do just that.
From both personal experience and observation, I have seen that writing can ameliorate feelings of depression, thereby increasing a parent’s ability to, cope with daily life and care for, their child. Writing in a group can also allow one to realize they are not alone and gain support for their struggles.
One participant of the first WARJ group had this to say when asked what she got out of it at the end of our 6 month sessions:
“…feeling understood and not alone…[it was]…much better than a support group for me as instead of commiserating we were putting our energy and feelings into art that heals and allows for release as well as a powerful way to share with others.”
WHO & WHEN:
Ø This group will be open to parents of children with a chronic illness.
Ø We will meet 8-9 times over a 9 month period.
Ø Each session will last 1.5 hours in Seattle, Washington
The workshop is led by Suzanne Edison, MA. She is a psychotherapist, poet and mother of a child with Juvenile Myositis. She is also the Family Support Director for the Cure JM Foundation. She has led workshops and given presentations on the Effects of Chronic Illness on Families and Coping with Chronic Illness to parents and medical professionals. She also was awarded grants to write and publish two chapbooks of poems based on her journey and other parents with their chronically ill child. She has poems published in many journals and anthologies. For more information please see her website, www.seedison.com..
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