Suzanne Edison, MA, MFA

Poet • Educator

  • Suzanne Edison, MA, MFA
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Suzanne’s Blog

Thank you for visiting my blog! I write on many topics and your comments are always welcome.

June 8, 2011 By Suzanne

Kids Make Art to Heal and Help-1st in a series

When my daughter was at her worst, overwhelmed by the mental, physical and emotional effects of many medications in addition to the pain and restrictions that her illness caused, she spent a lot of time making art.  Necessitated by the fact that she could not move around much, she found sedentary activities like knitting, beading and drawing, engaging and comforting.  At one point in her healing process we held a fundraiser to support research and a cure for her rare illness.  She made many beaded bracelets and necklaces to sell at the fundraiser (which was mostly a large concert event) and found that she sold out!  She discovered an entrepreneurial spirit and an ability to make a difference simultaneously.

I have found over the past few years that this is not such an unusual approach for kids with a life threatening or chronic illness, to take.  Spurred on by the need to “do something” to find cures for their illnesses, and by their parents support (and like-minded need), many children are finding creative means for healing and fundraising.

This is the first in a series of brief profiles of kids making art (with heart).  Kory is 10 years old now and has been struggling with the ups and downs of a rare autoimmune disease called Juvenile Myositis for 6 years. At her worst, she couldn’t walk, get up off the floor, brush her hair or teeth, or ride a bicycle. She had stopped playing with her older sister too.  She was tired and weak.

Kory lives in a sunny part of the US and loved to be outdoors. Because one of the known triggers of her illness is exposure to UV rays and this, along with the fact that the medications she’s on make her even more sun sensitive, she is not allowed to be in the direct sun. She needs to stay covered up and wear sunscreen when she is outdoors.  While there is treatment for her illness, and she is now able to ride a horse, a bike, run, play and wash clothes by hand, there is not yet a cure.  And Kory would very much like for there to be a cure. For herself and other children she has met with this same illness.

Kory paints, sketches, draws and doodles.  She has been inspired by other JM kids to sell her artwork.

Now she makes candles and photo holders to sell. She makes bookmarks too, and offers them in exchange for donations to Cure JM at local farmer’s markets. Her older sister also helps in this endeavor.  She wants to do more artwork and keep selling so she can contribute to the search for a cure.

When I asked her what the best thing about her project is she said, “it helps raise awareness and hope.” And when I asked in writing, what she wanted others to know about herself or this project, she wrote, “no matter how small the person or [the] project is, it counts !”  That was her exclamation point and I couldn’t have said it better myself.

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Filed Under: blog Tagged With: art, healing, kids sell their art for Cures

May 24, 2011 By Suzanne

Fear of Relapse-turning bubbling-baddies into art

I have noticed that though my daughter is feeling good, looking and acting like most other ten year old girls, I still get occasional bouts of fear of disease recurrence. I should mention she is on a small amount of medications and she’s still tapering off of them, so she’s not technically in remission from her original eruption of disease. And though she has a rare autoimmune disease, one for which there is not yet a cure, I take some comfort from reading and talking to mothers of kids with cancer whose children are in remission. We have been through similar experiences. http://community.lls.org/message/88611

I know these feelings are normal. But I hate the anxiety. Every time we reduce her medications, every little step towards remission, is a double-edged sword, a kind of “damned if you do, damned if you don’t” feeling. THIS IS NOT A WAY TO LIVE. And that word, LIVE, is the operative one here. What can I do to keep alive, I ask myself, and do I really have to put myself through this? How can I turn that bubbling stew in my stomach into something nourishing?

Here is what I have come to think. I can’t stop the feelings. What I can do is choose how to react to them. I can pretend to ignore them. OK, that is folly, they come back regardless; I grind my teeth more at night or get an upset stomach. Some worry prompts me to do research or ask questions, but this heart-pumping adrenaline rush non-stop mental agitation of fear mostly thwarts productive thinking.  Like a hamster on its wheel, I waste valuable time and energy engaging in worry.

I am learning to do several other things instead. Now I say to myself, “OK, there you are again, anxiety. I feel you in my stomach, turning my deep breaths into shallow sips. I will now focus on deeper breaths. I will write down swear words and everything I fear—which often comes down to how little control I have over many things, and the fear of losing my child altogether—and then find other, kinder words to use towards myself, towards my anxiety.” For ultimately, it is there to warn me not to become complacent. I also need to say to myself, “ let’s look at the facts right now.”

When I do that, when I write down the feelings AND the facts too, I find it is becoming an easier and more routine way for me to deal with my fears. I scribble on whatever piece of paper is handy, or I journal it at length and sometimes I even turn those scribbles into poems. Here is a poem, Bloodwork, I’ve been writing and revising for the last year. It will be published this spring by UCSF Press (in a slightly different version) in an anthology from a workshop called The Healing Art of Writing 2010.

I continue to look for writing that reminds me I am not alone, that if others can do it, I too can put my feelings into words. When I do, I seem able to hold a little more tension or release it, and I can move on..

Filed Under: essays

May 24, 2011 By Suzanne

Poems as Healing Vessels and “Righting” ourselves

This past week in my Writing as a “Righting” Journey group, I gave an assignment that incorporates some of the work I’ve been reading about emotional balance and the brain and my close reading of Jane Hirshfield’s poem Between the Material World and the World of Feeling, below.

I asked the participants to focus their attention on a time when they were worried about their child’s health. Then I asked them to complete a number of sentences that all began with “When I am worried about my child’s health I feel…or I am…” I gave them a list of things to think about: what color they felt, if they were the weather what would it be, some kind of food, a taste, smell, animal or sound of an animal, etc.  Then I asked them to do the same thing for when they feel grounded.

Next, I asked them to think of something that connects one thing to another.  I wanted them to write one sentence about when they are worried, write about traveling on whatever it was that connects them from one place to another (for one it was an airplane, for another a path through a bamboo grove) and then write a sentence that corresponds to that aspect of worry but is from the grounded side of their list.

I was looking for a way to create a pathway from worry to groundedness using language. I was also thinking about the poem below and how Jane Hirshfield (also her mentors, Rilke and Cavafy) uses an object to embody her feelings. In this poem, she imagines or wishes for, a particular chair, bentwood, and a very specific vase, blue-green, that could hold her and a range of feelings in “an equally tender balance.” And so finally I asked the writers to think of an object in their house they dearly loved and to write descriptively about that object.

This exercise seemed to grab the participants at different junctures. One found it easy to write about certain worries as she compared it to various other senses, objects or experiences while another took awhile to find an object in her house that she cared about. But when she thought about her piano, that had belonged to her grandmother, a whole new ‘aha’ moment opened for her.

Finally, we all read this poem together, aloud. We spent time looking for the feeling words, the words of materia and the connectors or vessels that held things and the immateria of feelings.  The poem has become for me another vessel.  One I return to again and again, so I may pour myself into it and have it echo back.

 

Between The Material World And The World Of Feeling

 

Between the material world and the world of feeling there must be a
border—on one side, the person grieves and the cells of the body grieve also;
the molecules also; the atoms. Of this there are many proofs. On the other,
the iron will of the earth goes on. The torture-broken femur continues to
heal even in the last hour, perhaps beyond; the wool coat left behind does
not mourn the loss of its master. And yet Cavafy wrote, “In me now
everything is turned into feeling—furniture, streets.” And Saba found in
a bleating goat his own and all beings’ sorrow, and this morning the voice
of that long-dead goat—which is only, after all, a few black-inked words—
cries and cries in my ears. Rilke, too, believed the object longs to awaken in
us. But I long for the calm acceptance of a bentwood chair and envy the
blue-green curve of a vase’s shoulder, which holds whatever is placed
within it—the living flower or the dead—with an equally tender balance,
and knows no difference between them.

 

–Jane Hirshfield   from After

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Filed Under: blog

May 20, 2011 By Suzanne

Pleasure, Writing, Healing and the Brain

Continuing my trajectory about writing as a “righting” journey and the brain, I came across an article by Judy Willis, neuroscientist and writing teacher/consultant in education.  Though she is talking about optimal parameters for learning, I am convinced that these same parameters work in favor of writing and emotional balance.

In review, the amygdala is the emotion center of the brain and the prefrontal cortex is where we can think about our emotions and make choices about how to react.  When we write, we are using our brain to do a great many tasks at once.  Here is Ms. Willis on the importance of writing.

“Consider all of the important ways that writing supports the development of higher-process thinking: conceptual thinking; transfer of knowledge; judgment; critical analysis; induction; deduction; prior-knowledge evaluation (not just activation) for prediction; delay of immediate gratification for long-term goals; recognition of relationships for symbolic conceptualization; evaluation of emotions, including recognizing and analyzing response choices; (my emphasis) and the ability to recognize and activate information stored in memory circuits throughout the brain’s cerebral cortex that are relevant to evaluating and responding to new information or for producing new creative insights—whether academic, artistic, physical, emotional, or social.”

If I had wanted any more validation than this, I couldn’t have asked for a better elucidation.

What is new in my understanding though is why writing, in a supportive emotional atmosphere, can also be healing. From my personal experiences and observations of others, I have written about why I think groups can be very important for healing, (see When Words Matter).  Here, Ms. Willis talks about learning in supportive atmospheres, (when we are writing about difficult experiences, we are also trying to “learn” how to deal with those feelings), and defines a “positive brain state”.

“The brain evolved to better protect the well-being of its owner and species. One way that this is important for the classroom is that effort and attention are limited commodities the brain parses out to the actions it predicts will be successful in protection or pleasure.

So, for example, when students participate in engaging learning activities in well-designed, supportive, cooperative groups, there is a positive emotional response in the brain. The pleasure of learning with one’s peers increases the brain’s release of dopamine, a neurotransmitter that increases pleasure, motivation, perseverance through challenges, and resilience to setbacks.

In addition, there is a beneficial response in the amygdala. The amygdala is a switching station (there’s one on each side of the brain) in the brain’s emotional-monitoring limbic system that determines if input will go to the reflective, higher cognitive brain (the prefrontal cortex) or down to the reactive, involuntary brain.

The brain scans of subjects learning in supportive and emotionally pleasurable situations show facilitated passage of information through the amygdala up to the higher cognitive brain, so learning associated with positive emotion is retained longer. Stress, however, determines if the intake is sent to that lower reactive brain.”

It may be that not only talking about stressful and painful emotional events, like how to deal with a chronically ill child, in a supportive group atmosphere unlocks dopamine (a lot of research has been done on the beneficial effects of all the arts on heart health) thereby reducing stress and providing people with more capacity to think, persevere and become resilient, but adding the activity of writing about those events and sharing pieces of that work with others, might heighten all of those beneficial effects.

It is time we integrated more art and writing programs into all of our medical care..

Filed Under: blog

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