As a result of my KUOW interviews in late January, a wonderful organization in California was made aware of my work and contacted me. The Children’s Hospice and Palliative Care Coalition wanted to feature some of my poems on their website.
I am honored to be asked and they have recently posted Teeter Totter, a poem I wrote a few months after my daughter was diagnosed with Juvenile Myositis and was exhibiting all the classic Cushingnoid signs (moon face, bloating, irritability to name a few) due to heavy doses of corticosteroids.
I think the mission and vision of chpcc dovetail with my sense of what’s needed for families who have children with serious health issues. Check them out.
Mission: Listen to, partner with, and work together for children with serious illnesses and all those who care for them.
Vision: We believe that all children with life-threatening conditions should have access to the care and emotional support they need to live life as fully as possible.